BREAKING: U.S. DOLLAR IS AT *RISK*… (you are in trouble)
What could this look like? What could someone change today, right now, without having to gear up for a fight with lawyers about contract wording? Start with the artifacts–the physical things patients take home with them (or the digital things emailed to them). A typical consent process might yield two: a copy of the consent form itself, usually with a contact for questions, and (maybe) a short brochure about the study. For a patient, that can feel like a cul-de-sac, with no real road to deeper engagement.
Consent forms could instead act as an invitation: a cover sheet describing the community’s committees, meetings, and events, and how a patient can get involved. This need not be a metaphorical invite: QR codes, links, and literal calendar invites can make joining a community a one-step process.
We could also push the interactivity of a consent form, beyond the quizzes popular in…
